=============================================================== == == == ----------- ALS INTEREST GROUP ----------- == == ALS Digest (#40, 03 MAY 1993) == == == == To subscribe, to unsubscribe, to request back issues, == == to contribute notes, etc. to ALS Digest, please send == == e-mail to: == == bro@huey.met.fsu.edu (Bob Broedel) == == == == All interested people may "broadcast" messages to == == ALS Digest subscribers by sending to: == == als@huey.met.fsu.edu == == == =============================================================== (1) ===== Leaving the net / New e-mail address ========== Date : Mon, 3 May 1993 07:48:03 -0700 From : Daniel L. Wendling Subject: Unsubscribe Hello! As you may remember, I work at the National Rehabilitation Information Center and ABLEDATA. While I wish to be unsub- scribed to the Interest Group, I will keep information about the Digest on our dial-up computer bulletin board. You may wish to contact Michael Strangelove to get on his list of electronic publications, Jay Leavitt, if you have any information to contribute to his Gopher information server (Cornucopia of Disability Information), and Lee Hancock, to get on his list "Health Sciences Resources on the Internet and Bitnet. Let me know if you need their addresses, at my new address, danw@cap.gwu.edu. I may in the future re-subscribe to your IG, but for now please unsubscribe me... Dan Wendling SysOp, ABLE INFORM BBS, 301/589-3563 Internet (new address): danw@cap.gwu.edu (2) ===== For the speech impaired ========== (a) ----- Date: 02 May 93 21:43:47 EDT From: Jaime Oliva/Kathy Miller <70272.1034@CompuServe.COM> Our company manufactures hardware/software products for the speech impaired. Please call or send me your address and I will send you our literature. Kathllen H. Miller, Ph.D. CCT, 508 Bellevue Terrace Pittsburgh, Pa. 15202 412-761-6062 Fax 412-7617336 (b) ----- Date : 03 May 93 15:13:45 EDT From : Charles M Ward <72567.400@CompuServe.COM> Subject: Speech and computer access I see a number of questions on speech and computer access with ALS. I have had ALS for 7 years and my voice was the first thing to go. I am still able to work because I have good tools to solve these problems. I have used scanning WSKE, and a Multivoice speech synthesizer on my wheelchair and my desk computer for five years. These have proved very successful. Steven Hawking uses a program called equilizer and a different speech synthesizer but he obviously has great success also. When we met and had a discussion it became obvious that our synthesizer voices were us. I have found that everyone forgets your original voice and only remembers your current voice. I believe it is very important to get a good clear speech system. Now that I have little movement left I have started using an Eyegaze system. This has been a godsend. With WSKE and a single switch I was typing 2 words per minute. Now I am back to 6-10 words! This system uses an infrared beam to sense the eye position while I look at a keyboard on a monitor. I then control a second computer through a t-tam interface. All this is complicated to explain and I would be happy to give a more thorough explanation to anyone who asks me. Suffice it to say that there are excellent tools being developed so no one should be a prisoner in their body. It takes some digging to find these but it is worth the effort. Start with Words plus in Lancaster CA, PO box 1229, 93584, 800-869 8521 The Eyegaze is from LC Technology, Fairfax Virginia, 703 425 7509 Thanks, Mike Ward (3) ===== Mercury ========== Here is the response to a question I asked on the AMALGAM list. ---------------------------------------------------------------- Date : Mon, 3 May 93 12:55:00 LCL Sender : Dental AMALGAM and MERCURY Poisoning : From : Siegfried Schmitt Subject: Re: amyotrophic lateral sclerosis > > I would be interested in knowing about mercury poisoning > as it relates to amyotrophic lateral sclerosis (ALS). > > Sincerely, Bob Broedel > ALS INTEREST GROUP > bro@huey.met.fsu.edu > Dear Bob Broedel, There are some articles about the possible connection between mercury poisoning and ALS. I will give you some examples: ND: #56 DE: 30.12.1989 AU: /Lundkvist, Susanna/ TA: Is there too little or too much cholinergic activity in amyotrophic lateral sclerosis? TZ: Medical Hypotheses (Journal title) EO: Montreal (Place) BD: 25 (Volume) EJ: 1988 (Year of publication) HN: 1 (Issue #) SE: 43-44 (Pages) ND: #112 DE: 18.09.1990 AU: /Adams, Charles R./Ziegler, Dewey K./Lin, James T./ TA: Mercury intoxication simulating amyotrophic lateral scler- osis. TZ: The Journal of the American Medical Association (JAMA) BD: 250 EJ: 1983 HN: 5 (vom 5. August) SE: 642-643 ND: #122 DE: 04.05.1991 AU: /Barber, Tracy E./ TA: Inorganic mercury intoxication reminiscent of amyotrophic lateral sclerosis. TZ: Journal of Occupational Medicine EO: Downer's Grove (Illinois) BD: 20 EJ: 1978 HN: 10 (Oktober) SE: 667-669 ND: #123 DE: 08.05.1991 AU: /Brown, Ian A./ TA: Chronic mercurialism - a cause of the clinical syndrome of amyotrophic lateral sclerosis. TZ: Archives of Neurology and Psychiatry BD: 72 EJ: 1954 SE: 674-681 ND: #127 DE: 20.05.1991 AU: /Mitchell, J. D./ TA: Heavy metals and trace elements in amyotrophic lateral scle- rosis. TZ: Neurologic Clinics EO: Philadelphia BD: 5 EJ: 1987 HN: 1 (Februar) SE: 43-60 ND: #133 DE: 01.09.1991 AU: /Roelofs-Iverson, Rita A./Mulder, Donald W./ /Elveback, Lila R./Kurland, Leonard T./Molgaard, Craig A./ TA: ALS and heavy metals: A pilot case-control study. TZ: Neurology EO: Cleveland BD: 34 EJ: 1984 HN: 3 SE: 393-395 ND: #134 DE: 01.09.1991 AU: /Felmus, Mark T./Patten, Bernard M./Swanke, Linda/ TA: Antecedent events in amyotrophic lateral sclerosis. TZ: Neurology EO: Cleveland BD: 26 EJ: 1976 HN: 2 SE: 167-172 ND: #135 DE: 01.09.1991 AU: /Tandan, Rup/Bradley, Walter G./ TA: [Neurological Progress] Amyotrophic Lateral Sclerosis: Part 2.: Etiopathogenesis TZ: Annals of Neurology BD: 18 EJ: 1985 HN: 4 SE: 419-431 ND: #144 DE: 15.09.1991 AU: /Kantarjian, Artin D./ TA: A syndrome clinically resembling amyotrophic lateral sclero- sis following chronic mercurialism. TZ: Neurology EO: Cleveland BD: 11 EJ: 1961 SE: 639-644 ND: #3 DE: 29.08.1989 AU: /Caroscio, James T./ TB: Amyotrophic Lateral Sclerosis - A Guide to Patient Care EJ: 1986 VG: Thieme Medical Publishers, Inc. EO: New York, Stuttgart SE: 93-95 TA: A toxic factor ND: #41 DE: 01.10.1989 AU: /Stoertebecker, Patrick/ TB: Mercury poisoning from dental amalgam - a hazard to human brain. EJ: 1985 VG: Stoertebecker Foundation for Research, Aakerbyvaegen 282, S-183 35 Taeby/Stockholm, Sweden EO: Stockholm ND: #88 DE: 29.04.1990 AU: /Trakhtenberg, I. M./ TB: Chronic effects of mercury on organisms EJ: 1974 EO: Washington D. C. ND: #111 DE: 18.09.1990 AU: /Steinmann, Bernhard/ TA: Chronische gewerbliche Quecksilbervergiftung mit dem Sym- ptomenbild der Amyotrophischen Lateralsklerose, Bulbaerpara- lyse und Encephalopathie. TZ: Fuehner-Wielands Sammlung von Vergiftungsfaellen EO: Berlin VG: Springer BD: 12 EJ: 1941-43 SE: 63-70 I hope that this excerpt from AMALDAT.A02 helps you.... Kind regards, Siegfried Schmitt == end of als 40 ==