=============================================================== == == == ----------- ALS INTEREST GROUP ----------- == == ALS Digest (#64, 26 October 1993) == == == == ----- amyotrophic lateral sclerosis (ALS) == == ----- motor neurone disease (MND) == == ----- Lou Gehrig's disease == == ----- == == This e-mail list has been set up to serve the world-wide == == ALS community. That is, ALS patients, ALS researchers, == == ALS support/discussion groups, ALS clinics, etc. Others == == are welcome (and invited) to join. Currently there are == == 140+ subscribers. == == == == To subscribe, to unsubscribe, to contribute notes, == == etc. to ALS Digest, please send e-mail to: == == bro@huey.met.fsu.edu (Bob Broedel) == == == == All interested people may "broadcast" messages to == == ALS Digest subscribers by sending to: == == als@huey.met.fsu.edu == == == == Bob Broedel; P.O. Box 20049; Tallahassee, FL 32310 USA == =============================================================== == Back issues are available via e-mail from: == == LISTSERV@mailer.fsu.edu == == send an e-mail message that says INDEX ALS == == Also available via anonymous FTP at mailer.fsu.edu == == directory ftp/pub/als == =============================================================== (1) ===== ALS/MND Societies and Foundations International ========== Many thanks to Ms. Sydell Chaiet of the ALS Association (USA) and to Ms. Ruth Carlyle of the Motor Neurone Disease Association (UK) for the information that follows. Hopefully by circulating the list we will learn of additional information that can be added. We seek information about TEL (telephone), FAX (facsimile), and E-M (electronic mail) for organizations that are listed. We also would be interested in knowing about other organizations that should be added. For example, we would like to add such countries as Germany, Israel, Russia, Poland, Austria, Belgium, Finland, Greece, etc. ========== ALS/MND SOCIETIES AND FOUNDATIONS INTERNATIONAL ============ AFRICA ----------------- ALS of South Africa c/o Dr. A.H. Borowitz 42 Victoria Street Oaklands 2192 Johannesburg SOUTH AFRICA TEL ??? FAX ??? E-M ??? Diane Husband Motor Neurone Disease Association of South Africa c/o P.O. Box 781880, Sandton 2146, Transvaal, SOUTH AFRICA TEL 27-11-789-7248 FAX 27-11-789-7248 E-M ??? ARGENTINA -------------- Dr. Alberto Dobrovsky Asociacion Distrofia Muscular Cordoba 5824, Buenos Aires (1414) ARGENTINA TEL 54-1-773-1714 FAX 54-1-325-6389 E-M ??? The ALS Association Argentina Support Group Enrique G. Saint John Lateral Amiotrofica Callao 66, ler. Pise Buenos Aires 1022 ARGENTINA TEL ??? FAX ??? E-M ??? AUSTRALIA -------------- Mavis Gallienne Motor Neurone Disease Association of Australia P.O. Box 262, Caulfield South 3162, Victoria, AUSTRALIA TEL 61-3-596-4761 FAX 61-3-596-8005 E-M ??? Dr. Dawn Thew ALS - Motor Neurone Disease Research Institute P.O. Box 635, Gordon 2072, New South Wales, AUSTRALIA TEL 61-2-498-7960 FAX 61-2-498-7960 E-M ??? BRAZIL ----------------- Associacao Brasileira de Distrofia Muscular Edificio da Biologia, Sala 348 Cidade Universitaria, San Paulo - SP- BRAZIL TEL ??? FAX ??? E-M ??? CANADA ----------------- Joanne M. Brown ALS Society of Canada Head Office 90 Adelaide Street, E., Ste. B101 Toronto Ontario M5C 2R4 CANADA TEL 1-416-362-0269 FAX 1-416-362-0414 E-M ??? ALS Society of Alberta 3 Woodfield Drive, SW Calgary Alberta T2W 3T2 CANADA TEL ??? FAX ??? E-M ??? ALS Society of British Columbia 411 Dunsmuir Street, 2nd floor Vancouver British Columbia V6B 1X4 CANADA TEL (604) 685-0737 FAX ??? E-M ??? COLUMBIA --------------- Ivan Dario Arteaga Fundacion Omega Carrera 30 No. 89-79 (La Castellana), Bogota COLUMBIA TEL 57-1-236-5004 FAX 57-1-218-3315 E-M ??? CROATIA ---------------- Marija Sostarko Union of Muscular Dystrophy Societies of Croatia Nova Ves 44, 41000 Zagreb CROATIA TEL 38-41-271-849 FAX ??? E-M ??? DENMARK ---------------- Danish ALS Society Lojesouej 3670 VEKSO (ST) DENMARK TEL (45) (2) 17 01 00 FAX ??? E-M ??? Jette Moller Muskelsvindfonden Vestervang 41, DK-8000 Arhus C. DENMARK TEL 45-86-13-97-77 FAX ??? E-M ??? FRANCE ----------------- ARS Association pour la Recherche sur la Sclerose Laterale Amyotrophique Forum Saint-Eustache 1 rue Montmartre 75001 Paris FRANCE TEL 33-1-45-08-04-00 FAX 33-1-42-33-77-87 E-M ??? GUAM ------------------- Madeleine Z. Bordallo Guam Lytico and Bodig Association P.O. Box 1458 Agana 96910 GUAM TEL 671-477-2293 FAX 671-477-2294 E-M ??? ICELAND ---------------- Rafn Jonsson Motor Neurone Disease Society in Iceland Bugdulaek 3, 105 Reykjavik, ICELAND TEL 354-1-32005 FAX 354-1-682633 E-M ??? INDIA ------------------ Nicky Bhagat Motot Neurone Disease Support Group 40 Kolagarh Road, Street No. 5, Rajendra Nagar, Debra Dun (UP), 248001 INDIA TEL 91-135-23675 FAX ??? E-M ??? R. Janardana Rao Indian Muscular Dystrophy Association (IMDA) 21-136, Batchupet, Malchilipatnam - 521 001 (AP) INDIA TEL 91-8672-2817 FAX ??? E-M ??? IRELAND ---------------- Eithne Frost Irish Motor Neurone Disease Association Carmichael House North Brunswick Street Dublin 7 IRISH REPUBLIC TEL 353-1-8730422 FAX 353-1-8735737 E-M ??? ITALY ------------------ Associazione Sclerosi Lateral Amiotrofia c/o Centro Medico di Riabilitazione Via per Revislate Veruno 28010 (NO) ITALY TEL 39-322-83-01-01 FAX 39-322-83-02-94 E-M ??? JAPAN ------------------ Yukio Matsuoka Japan ALS Association 9-10-701, Shin-ogawa-Cho Shinjuku Tokyo 162 JAPAN TEL 81-3-3267-6942 FAX 81-3-3267-6940 E-M ??? MEXICO ----------------- FYADENMAC (Familiares y Amigos de Enfermos de la Neurona Motora AC) Maestro Rural Num. 74, Col. Un Hogar para Nostros 11330 D.F. MEXICO TEL 52-5-3-41-15-95 FAX ??? E-M ??? NETHERLANDS ------------ Constance Harvey ALS diagnose groep Vereniging Spierziekten Nederland Buerweg 22, 1861 CJ Bergen NH NETHERLANDS TEL 31-2208-18709 FAX 31-2154-18400/20500 E-M ??? Eric Trietsch ALS Research Fund/Stichting ALS Onderzoekfonds Joos van Clevelaan 8, 3723 PG Bilthoven NETHERLANDS TEL 31-30-280346/31-30-533591 FAX 31-30--533665 E-M ??? NEW ZEALAND ------------ Susan Sweetman Motor Neurone Disease Society of New Zealand P.O. Box 1613, Auckland NEW ZEALAND TEL 64-9-376-5405/64-9-625-5552 FAX 64-9-360-2305 E-M ??? NORWAY ----------------- Bjorg Hille Griman Kontaktgruppen for ALS Foreningen for Muskelsyke, Hardangervegen 314, 5232 Helldal NORWAY TEL ??? FAX ??? E-M ??? PAKISTAN --------------- Shahida Abdullah Ma Ayesha Memorial Center for care & control of Neuromuscular Diseases SNPA-22 Block 7/8 (near commercial area) FMCHS, Karachi, PAKISTAN TEL ??? FAX ??? E-M ??? Association of Physically Disabled Persons (Regd) House 2 Street 40 - F. 7/1 Islambad PAKISTAN TEL ??? FAX ??? E-M ??? PHILIPPINES ------------ The ALS Association Philippines Support Group Joel Abad Pelayo 78 Masikap Extension Central District, Quezon City 1100 PHILIPPINES TEL 63-2-922-8274 FAX 63-2-922-9199 E-M ??? The ALS Association Philippines Support Group Martesio C. Perez, M.D. Neurologist Makati Medical Center Suite E-3 First Floor Makati, Metro Manila, PHILIPPINES TEL ??? FAX ??? E-M ??? PORTUGAL --------------- Fernando Moragdo Associacao Portuguesa de Duencas Neuomusculares Servico de Neurologica, Hospital de Santa Maria, 7600 Lisboa PORTUGAL TEL 351-1-797-8821 FAX 351-1-797-7782 E-M ??? ROMANIA ---------------- Dr. C. Vasilescu Neuromuscular Diseases Association of Romania Institute of Neurology C.P. 61-42 RO-75622 Bucharest ROMANIA TEL 40-1-6756273 FAX ??? E-M ??? Ioana Monica Antoci AHNR (Asociatia Handicapatilor Neuromotori din Romania) Str. Sava Tekelija Nr. 2 Arad 2900 ROMANIA TEL 40-966-15126 FAX ??? E-M ??? SCOTLAND --------------- Anne Jarvis Scottish Motor Neurone Disease Association 50 Parnie Street Glasgow G1 5LS SCOTLAND TEL 44-41-552 0507 FAX 44-41-776 3039 E-M ??? SPAIN ------------------ Dr. Jesus Mora ADELA (Association Espanola de ELA) Apartado Correos 40030 28080 Madrid SPAIN TEL 34-1-314-10-10 extension 237 FAX 34-1-733-66-14 E-M ??? SWEDEN ----------------- Mia Lundstrom NHR (Neurologiskt Handikappades Riksforbund) Box 3284 S-103 35 Stockholm SWEDEN TEL (46) 8 14 03 20 FAX (46) 8 24 13 15 E-M ??? SWITZERLAND ------------ W. Parlette International ALS/MND Research Foundation Tiradelza de Monteggio Termine CH-6998 SWITZERLAND TEL (41) (91) 73 21 52 FAX (41) (91) 73 22 32 E-M ??? TAIWAN ----------------- Ko-Pei Kao Neuromuscular Service Veterans General Hospital Shih-Pai Taipei Taiwan 112 REPUBLIC OF CHINA TEL 886-2-8712121 FAX 886-2-8737870 E-M ??? TUNISIA ---------------- Prof. M. Ben Hamida ALS Society of Tunisia Institut de Neurologie, La Rabta 1007 TUNISIA TEL ??? FAX ??? E-M ??? TURKEY ----------------- Prof. Coskum Osdemir Association of Muscle Disorders Hatboyu cad. No. 12, Yesilkoy, Istanbul, TURKEY TEL 90-1-5730975/6310958 FAX 90-1-6630168/5334393 E-M ??? UGANDA ----------------- The Biruduma Muscular Dystrophy Association P.O. Box 596 Mbarara, UGANDA TEL ??? FAX ??? E-M ??? UNITED KINGDOM --------- Peter Cardy Motor Neurone Disease Association P.O. Box 246 Northampton NN1 2PR UNITED KINGDOM TEL (44) 604 250505/22269 FAX (44) 604 24726 E-M ??? UNITED STATES OF AMERICA- Michael Havlicek ALS Association 21021 Ventura Boulevard, Suite 321 Woodland Hills, CA 91364 USA TEL 1-818-340-7500 FAX 1-818-340-2060 E-M ??? URUGUAY ------------ Dr. O. Vincent MNDALSU (Motor Neurone Disease & Amiotrofia Lateral Esclerosis in Uruguay) Av. Italia 3318, Montevideo, URUGUAY TEL 598-2-471616 FAX 598-2-475461 E-M ??? ====================================================================== Again, many sincere thanks to: Ms. Sydell Chaiet Amyotrophic Lateral Sclerosis Association 21021 Ventura Boulevard, Suite 321 Woodland Hills, CA 91364 USA TEL (818) 340-7500 FAX (818) 340-2060 E-M ??? Ms. Ruth Carlyle Motor Neurone Disease Association P.O. Box 246 Northampton, NN1 2PR UNITED KINGDOM TEL 44-604-250505/22269 FAX 44-604-24726 E-M ??? == end of als 64 ==